Céline Dion Expresses Hope for a cure for Stiff Person Syndrome

Renowned Canadian songstress, Céline Dion, has opened up about her ongoing battle with Stiff Person Syndrome, revealing her unwavering hope for a cure while she adjusts to living with the condition.

In a recent interview with Vogue France, Dion shed light on the neurological disorder, characterized by progressive muscular rigidity, which she was diagnosed with in December 2022.
Since then, she has scaled back her touring commitments and maintained a low profile, although she surprised audiences with an appearance at the Grammys in February, receiving a rousing standing ovation.

Acknowledging the ongoing challenge, Dion expressed her optimism, stating, ”I haven’t beat the disease, as it’s still within me and always will be. I hope that we’ll find a miracle, a way to cure it with scientific research, but for now I have to learn to live with it. So that’s me, now with Stiff Person Syndrome.”

The ‘Emotions’ hitmaker further revealed her rigorous regimen of athletic, physical, and vocal therapy, emphasizing her determination to make the most of her abilities. 

“Five days a week I undergo athletic, physical and vocal therapy. I work on my toes, my knees, my calves, my fingers, my singing, my voice… I have to learn to live with it now and stop questioning myself. At the beginning I would ask myself: why me? How did this happen? What have I done? Is this my fault?” she explained.

Despite the uncertainties surrounding her return to performing, the multiple award-winning singer and songwriter remains steadfast in her commitment to her recovery journey, driven by her passion, dreams, and unwavering determination.

“Either I train like an athlete and work super hard, or I switch off and it’s over, I stay at home, listen to my songs, stand in front of my mirror and sing to myself. I’ve chosen to work with all my body and soul, from head to toe, with a medical team. I want to be the best I can be. My goal is to see the Eiffel Tower again!

‘’For four years I’ve been saying to myself that I’m not going back, that I’m ready, that I’m not ready… As things stand, I can’t stand here and say to you: ‘Yes, in four months. I don’t know… My body will tell me. On the other hand, I don’t just want to wait. It’s morally hard to live from day to day. It’s hard, I’m working very hard and tomorrow will be even harder. Tomorrow is another day. But there’s one thing that will never stop, and that’s the will. It’s the passion. It’s the dream. It’s the determination,” she added.